61. Betty Williams - Learning About the ADA (01:58)

Date:
2018-06-05
Main contributors:
Indiana Disability History Project
Summary:
“I was learning something about that Title and how we could apply it to the community in which we lived in and how it can help people's lives.” When the Americans with Disabilities Act (ADA) passed, Betty Williams wanted to learn more about how the new law could help people with disabilities become equal members of their community. She arranged monthly meetings with an expert to discuss the legislation. “Every time I went in I was learning. I was learning a new Title each time,” recalls Betty. She is an award-winning leader in the self-advocacy movement, having served as president of both Self-Advocates of Indiana and the national organization Self-Advocates Becoming Empowered. The interview was recorded at the 2009 Indiana Governor's Council for People with Disabilities Conference.

62. "I Was a Feisty Mother" - Mary Lou Melloy (06:45)

Date:
2018-01-29
Main contributors:
Indiana Disability History Project
Summary:
“You don’t have the right to deny them the opportunity to try this.” Mary Lou Melloy's daughter, Cindy, was born in 1958. Doctors told the family they should put Cindy in a residential facility. Mary Lou and her husband, Don, had other plans for their daughter. In this clip, Mary Lou discusses the work it took to get Cindy accepted into public school. After completing school in Indianapolis, Cindy went to a workshop for a while until she landed a community job. Although Mary Lou was initially hesitant about a community job, in the end she said it was a wonderful opportunity for her daughter. Mary Lou started encouraging other parents to let go of their fears and give their children the opportunity to find a job in the community. She was interviewed in 2017.

63. Don Melloy - Development of The Arc Chapters (06:09)

Date:
2018-02-16
Main contributors:
Indiana Disability History Project
Summary:
“They asked me to work on the objective of developing an Arc in every county in Indiana,” says Don Melloy. Don would take off after to work to travel around the state meeting with parents and community members. He would discuss the benefits of establishing a local Arc. To Don’s surprise, he found some groups of parents were not interested in talking with other groups of parents. The original focus of The Arc was to provide programming to children with disabilities who were excluded from public schools. Don says the United Way and other non-profit organizations were instrumental in funding many of the early initiatives of the local Arc agencies.

64. Karen Vaughn - Opening Doors to Access for All (03:35)

Date:
2018-06-22
Main contributors:
Indiana Disability History Project
Summary:
“When I was young I knew nothing about any legislative activities or laws that would allow an individual with a disability to have any kind of civil rights because I stayed in several nursing homes and at that time, there were no patients' rights,” states Karen Vaughn. In 2009, Karen Vaughn visited the Story Tent at the Indiana Governor’s Council for People with Disabilities conference and shared what she learned when she attended Partners in Policymaking and Disabilities Rights Education Defense Fund training in 1992. She took that information and assisted state parks with their ADA compliance plans.

65. New Castle State Developmental Center Investigation WISH-TV8 - Part Two (05:57)

Date:
2018-03-18
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the second WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 6, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

66. New Castle State Developmental Center Investigation WISH-TV8 - Part One (05:11)

Date:
2018-03-22
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the first WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 5, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

67. Danielle and Diane Pitmon - The Love Grows Stronger (05:34)

Date:
2018-06-05
Main contributors:
Indiana Disability History Project
Summary:
“It’s a relationship that’s based on what’s inside, not outside, and what’s in our minds and our heart.” When Danielle and Diane Pitmon were interviewed in 2018, they had been married as husband and wife for 18 years. They now share their life as wife and wife. In 2015, Danielle had something to tell Diane. “I was so scared she would leave me, hate me forever, all of that. But I just couldn't hide it anymore.” Diane experienced various emotions but after taking time to think about it said, “I love you no matter who you are.” Danielle and Diane share how their love for each has grown stronger over the past few years. Danielle says, “I think our relationship has definitely blossomed and grown even more. And it's just, we're inseparable.”

68. Indiana University Libraries Moving Image Archive (03:20)

Date:
2018
Summary:
Short promotional video highlighting the various attributes of IU Libraries Moving Image Archive (IULMIA). To learn more about IULMIA, check out our website: https://libraries.indiana.edu/moving-image-archive

69. Mary Ciccarelli, MD - Improving Health Care Services (05:01)

Date:
2018-05-10
Main contributors:
Indiana Disability History Project
Summary:
“It's an interesting question to ask, how I got interested in the field of disability services,” states Dr. Mary Ciccarelli. When Dr. Ciccarelli began her training in the late ‘70s, early ‘80s, there was little specific attention paid to disabilities. As an internist and pediatrician, Dr. Ciccarelli found it harder to accommodate all her patients. Other pediatricians, who took care of youth with special health care needs, were transitioning patients to her practice. She decided she needed to find a better way of doing things. As a result, Dr. Ciccarelli collaborated with IPIN, Indiana Parent Information Network, on a pilot project funded by Indiana Maternal Child Health to develop transition services for youth with disabilities. “I think there's better methods today than there were in the late '70's,” explains Dr. Ciccarelli. Today, the Indiana School of Medicine curriculum includes training on the culture of disability, rights of people with disabilities, and teaming with other professionals. Dr. Ciccarelli says, “I think we'll see evolution and improvement, I hope, in the readiness of our graduates in caring for people with disabilities." Dr. Ciccarelli is a Professor of Clinical Medicine and Clinical Pediatrics at Indiana University School of Medicine. She is director of the Center for Youth and Adults with Conditions of Childhood (CYACC), which provides resources to youth ages 11 to 22 with special health care needs. She was interviewed in 2018.

70. New Castle State Developmental Center Investigation WISH-TV8 - Part Five (02:29)

Date:
2018-03-22
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the fifth WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 9, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

71. New Castle State Developmental Center Investigation WISH-TV8 - Part Seven (03:27)

Date:
2018-03-21
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the seventh (final) WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 13, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

72. New Castle State Developmental Center Investigation WISH-TV8 - Part Six (07:36)

Date:
2018-03-18
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the sixth WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 12, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

73. New Castle State Developmental Center Investigation WISH-TV8 - Part Four (04:53)

Date:
2018-03-22
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the fourth WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 8, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

74. Jamie Beck and Dan Stewart - Making History in Indiana (04:19)

Date:
2018-10-25
Main contributors:
Indiana Disability History Project
Summary:
“It was my time to play my part in the circle of life.” On June 13, 2018, Jamie Beck became the first person in Indiana to have her guardianship terminated and a Supported Decision-Making agreement put in place. Jamie had been adjudged as incapacitated eight years prior. With no parent living, Dan Stewart, president of Achieva Resources Corp., Inc., was appointed as her permanent legal guardian. Jamie was placed in a nursing home. By the time the Wayne County Superior Court judge granted her petition, 28 year-old Jamie was employed in Muncie and living in an apartment with a roommate. In this interview excerpt, Jamie and Dan discuss the process and the challenges leading up to Jamie’s historic accomplishment. Indiana Governor Eric Holcomb signed Senate Enrolled Act 380 into law on April 24, 2019. The law recognizes Supported Decision-Making Agreements as a valid way for someone to demonstrate decision-making capacity in Indiana and requires Supported Decision-Making and other less restrictive alternatives to be considered before the court will appoint a guardian. “I believe I am capable of doing it on my own, but with help,” Jamie told the judge. She and Dan were interviewed on October 25, 2018.

75. New Castle State Developmental Center Investigation WISH-TV8 - Part Three (04:05)

Date:
2018-03-18
Main contributors:
WISH-TV
Summary:
In 1997, WISH-TV secretly filmed resident abuse by employees inside New Castle State Developmental Center in New Castle, Indiana. The impact of making the disturbing, hidden camera footage public was the closure of the Center in 1998. Channel 8, the Indianapolis station affiliated with CBS, broadcast their footage as part of a series of seven investigative reports aired between May 5 and May 13, 1997. Indiana Governor Frank O'Bannon visited the Center the day after the first TV report. An AP news article published May 7 said that the Governor was "outraged." "If you had loved ones in one of these state facilities you'd be worried about them." "No citizen's tax dollars should be paying for abuse and not care." Two employees had been fired before the report aired, and three workers suspended. Portions of the WISH-TV reports were broadcast nationally by CBS news with anchor Dan Rather. Originally known as the Indiana Village for Epileptics, the institution opened in 1907 on 1300 acres in rural Henry County. Although its purpose was to serve patients with convulsive disorders, the mission later broadened to include intellectual and other disabilities. This is a video of the third WISH-TV news report about abuse at the New Castle State Developmental Center, broadcast on May 7, 1997. It is included in the Indiana Disability History Project collection with permission of the station.

76. Dr. Mary Ciccarelli Interview (1:09:00)

Date:
2018-05-10
Main contributors:
Indiana Disability History Project
Summary:
“It's an interesting question to ask, how I got interested in the field of disability services,” states Dr. Mary Ciccarelli. When Dr. Ciccarelli began her training in the late ‘70s, early ‘80s, there was little specific attention paid to disabilities. As an internist and pediatrician, Dr. Ciccarelli found it harder to accommodate all her patients. Other pediatricians, who took care of youth with special health care needs, were transitioning patients to her practice. She decided she needed to find a better way of doing things. As a result, Dr. Ciccarelli collaborated with IPIN, Indiana Parent Information Network, on a pilot project funded by Indiana Maternal Child Health to develop transition services for youth with disabilities. Dr. Ciccarelli discusses the challenges families face when moving from pediatric to adult care. It can be frightening for parents to let go and support their children to become more autonomous in making health care decisions. As a person moves from pediatric care to adult health care services, there may be a need to redefine the individual’s care team. In addition, billing codes and language in mental health services differs between pediatrics and the adult service system. “How do we improve healthy opportunities for persons with disabilities in our state?” Dr. Ciccarelli talks about her experience working with Special Olympics of Indiana athletes. For the past few years, she has assisted with providing health-screenings for the athletes at the State Games. Dr. Ciccarelli discusses the need to educate people with disabilities and caregivers on how to live healthier lives. To better serve patients with disabilities, Dr. Ciccarelli describes the training IU medical students receive. “I think there's better methods today than there were in the late '70's,” Today, the Indiana School of Medicine curriculum includes training on the culture of disability, rights of people with disabilities, and teaming with other professionals. Dr. Ciccarelli says, “I think we'll see evolution and improvement. I hope, in the readiness of our graduates in caring for people with disabilities.” Dr. Ciccarelli is a Professor of Clinical Medicine and Clinical Pediatrics at Indiana University School of Medicine. She is director of the Center for Youth and Adults with Conditions of Childhood (CYACC), which provides resources to youth ages 11 to 22 with special health care needs. She was interviewed in 2018.

77. Pat Howey Interview (34:20)

Date:
2018-10-12
Main contributors:
Indiana Disability History Project
Summary:
"She shouldn't have to be put on a bus and spend 45 minutes on a bus one way to go to school," explains Pat Howey of her daughter's experience at six years old being sent to a school for children with physical disabilities. Pat discusses her educational advocacy for her daughter in the late 1980s in Tippecanoe County, Indiana. She shares how those experiences lead her to become a nationally known special education advocate and consultant. Pat says, “I first got involved in special education advocacy pretty much the day my daughter entered kindergarten.” During her daughter’s school years, Pat helped build a strong advocacy movement in Tippecanoe County. “We were able to make a lot of changes. We had people filing state complaints. I mean, they were just active all over the place,” explains Pat. Today, Pat sees parents fighting the same battles she fought in the late ‘80s and early ‘90s. She says, “We are hearing the same things today that we heard back in the '80s and '90s -- we would love to do that, but we don't have the money for it.” Pat tells parents to stay vigilant. She recommends parents start requesting hearings and start filing complaints. Pat Howey was interviewed in Indianapolis in 2016.

78. Bettye Dunham Interview (1:05:00)

Date:
2018-03-26
Main contributors:
Indiana Disability History Project
Summary:
Bettye Dunham got her start in the disability field in 1975. She was a support person to an Indiana University student needing assistance with note taking and studying. Bettye says, “The things I learned from Chris really endeared me to the field.” Bettye went on to work 19 years at Developmental Services in Columbus, Indiana where she started a workshop program in Jennings County. This workshop would include residents from Muscatutuck State Developmental Center. “The VR counselors and I interviewed around 300 individuals, three to 400 individuals, residents of Muscatatuck…that was probably one of the most interesting points in my career…Talking with them about how they felt about being there, what their dreams and hopes were,” explained Bettye. Eventually, they hired around 20 people to work in the Jennings workshop. At the time of her 2013 interview, Bettye had been the C.E.O. of Rauch in New Albany, Indiana for over 20 years. Rauch started in 1953. Bettye says, “There were parents that had children with disabilities, all different ages of disabilities that came together. And they said, you know, there ought to be something. There ought to be some service or something that can help our children down the road and help them develop.” Bettye explains several of the services Rauch has offered including a sheltered workshop, American Sign Language, Healthy Families program, and community opportunities. She also addresses the challenges the agency has faced over the years. “To me, one of the most significant steps in the history of our field in Indiana was that 317 Task Force and putting some blueprints in place for what the future of services should look like,” explains Bettye. Kathy Davis, who was the Secretary of Family and Social Services Administration (FSSA) at that time, chaired the 317 Task Force. Bettye on was on the 317 Task Force and talks about a few of the outcomes. In her interview, Bettye also discusses supported employment, natural supports, and the changes she has seen in the disability field over the years. One struggle Bettye sees is health care. She says, “One of the future challenges is going to be what happens to managed care and health care and how our population survives through that change, if that change comes about.”

79. Lawrence Carter-Long Interview (27:57)

Date:
2018-10-01
Main contributors:
Indiana Disability History Project
Summary:
"There's a new crop of people that are saying, wait a minute, I'm not ashamed of anything. I don't need to distance myself from anything. In fact, I am a disabled person first." In this interview, Lawrence Carter-Long discusses his views on the evolution from people-first to identity-first language, and changes in the way disability is depicted in the media. "With more disabled people being creative behind-the-scenes," using new, more direct digital outlets, he has noticed that the stories we are seeing have more complexity, depth and authenticity. "The gatekeepers no longer have the same types of power." Public Affairs Specialist for the National Council on Disability at the time he was interviewed in 2015, Lawrence grew up in Indianapolis and Terre Haute. He was program coordinator for the Disabilities Network of New York City when he undertook the Gimp Project, a collaboration with dance choreographer Heidi Latsky. As a young person, Lawrence says modern dance was never an option for him. "It wouldn't even enter my consciousness because of my physicality and because of having cerebral palsy." However, he recalls a theater teacher at North Vigo High School in Terre Haute, Indiana who was pivotal in encouraging him "to do things that I wouldn't have imagined possible." Lawrence also discusses disability and film, talking about his experience curating and co-hosting the Turner Classic Movies festival, The Projected Image: A History of Disability in Film. The 2012 series reached 87 million people. "It was a fantastic opportunity to look back as a way to position ourselves and to say, how do we want to move forward." Earlier, Lawrence laid the groundwork for The Projected Image with a successful, experimental festival in New York City, "Dis This." He was interviewed at the Indiana Governor's Council for People with Disabilities conference in Indianapolis.

80. Senator Tom Harkin - Americans with Disabilities Act: The Past and the Future (06:10)

Date:
2018-02-23
Main contributors:
Indiana Disability History Project
Summary:
"I must be completely honest - I was not the first person to introduce the Americans with Disabilities Act," retired U.S. Senator Tom Harkin pointed out in an interview with the Indiana Disability History Project. In fact, Senator Harkin had been one of the main authors of the landmark civil rights legislation, and became its chief Senate sponsor. He also gives credit to the ADAPT "Capitol Crawl" action on March 12, 1990 with influencing legislators to finally get the law on the books. Before the end of May of that year, the bill had been passed by both chambers of the House. It was signed by President George H.W. Bush on July 26. In this 2017 interview excerpt, he looks back on a historic moment and forward to the work ahead. In his view, the next frontier is jobs. "We have not broken through on employment." Tom Harkin was a United States Senator from Iowa from 1985 to 2015. He was interviewed on December 4, 2017 at the Indiana Governor’s Council for People with Disabilities Conference where he was the keynote speaker.