101. Mary Ciccarelli, MD - Improving Health Care Services (05:01)

Date:
2018-05-10
Main contributors:
Indiana Disability History Project
Summary:
“It's an interesting question to ask, how I got interested in the field of disability services,” states Dr. Mary Ciccarelli. When Dr. Ciccarelli began her training in the late ‘70s, early ‘80s, there was little specific attention paid to disabilities. As an internist and pediatrician, Dr. Ciccarelli found it harder to accommodate all her patients. Other pediatricians, who took care of youth with special health care needs, were transitioning patients to her practice. She decided she needed to find a better way of doing things. As a result, Dr. Ciccarelli collaborated with IPIN, Indiana Parent Information Network, on a pilot project funded by Indiana Maternal Child Health to develop transition services for youth with disabilities. “I think there's better methods today than there were in the late '70's,” explains Dr. Ciccarelli. Today, the Indiana School of Medicine curriculum includes training on the culture of disability, rights of people with disabilities, and teaming with other professionals. Dr. Ciccarelli says, “I think we'll see evolution and improvement, I hope, in the readiness of our graduates in caring for people with disabilities." Dr. Ciccarelli is a Professor of Clinical Medicine and Clinical Pediatrics at Indiana University School of Medicine. She is director of the Center for Youth and Adults with Conditions of Childhood (CYACC), which provides resources to youth ages 11 to 22 with special health care needs. She was interviewed in 2018.

102. Pat Howey Interview (34:20)

Date:
2018-10-12
Main contributors:
Indiana Disability History Project
Summary:
"She shouldn't have to be put on a bus and spend 45 minutes on a bus one way to go to school," explains Pat Howey of her daughter's experience at six years old being sent to a school for children with physical disabilities. Pat discusses her educational advocacy for her daughter in the late 1980s in Tippecanoe County, Indiana. She shares how those experiences lead her to become a nationally known special education advocate and consultant. Pat says, “I first got involved in special education advocacy pretty much the day my daughter entered kindergarten.” During her daughter’s school years, Pat helped build a strong advocacy movement in Tippecanoe County. “We were able to make a lot of changes. We had people filing state complaints. I mean, they were just active all over the place,” explains Pat. Today, Pat sees parents fighting the same battles she fought in the late ‘80s and early ‘90s. She says, “We are hearing the same things today that we heard back in the '80s and '90s -- we would love to do that, but we don't have the money for it.” Pat tells parents to stay vigilant. She recommends parents start requesting hearings and start filing complaints. Pat Howey was interviewed in Indianapolis in 2016.

103. Senator Tom Harkin - Americans with Disabilities Act: The Past and the Future (06:10)

Date:
2018-02-23
Main contributors:
Indiana Disability History Project
Summary:
"I must be completely honest - I was not the first person to introduce the Americans with Disabilities Act," retired U.S. Senator Tom Harkin pointed out in an interview with the Indiana Disability History Project. In fact, Senator Harkin had been one of the main authors of the landmark civil rights legislation, and became its chief Senate sponsor. He also gives credit to the ADAPT "Capitol Crawl" action on March 12, 1990 with influencing legislators to finally get the law on the books. Before the end of May of that year, the bill had been passed by both chambers of the House. It was signed by President George H.W. Bush on July 26. In this 2017 interview excerpt, he looks back on a historic moment and forward to the work ahead. In his view, the next frontier is jobs. "We have not broken through on employment." Tom Harkin was a United States Senator from Iowa from 1985 to 2015. He was interviewed on December 4, 2017 at the Indiana Governor’s Council for People with Disabilities Conference where he was the keynote speaker.

141. Erik May (39:41)

Date:
2018-05-22
Main contributors:
Indiana University
Summary: