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On December 24, 1958, Mary Lou and Don Melloy were told their daughter Cindy should be placed in an institution. Mary Lou said, “My response was that they didn’t know what they were talking about…a very unhappy, aggressive mother left the room.” Instead, the Melloys took Cindy home and she started receiving services from Easterseals in Evansville, Indiana.
The Melloys eventually moved to Indianapolis. When Cindy was five years old, Mary Lou visited every school corporation in Marion County trying to find the best school for Cindy. Mary Lou decided Washington Township would be the easiest school to "strong arm" into taking her daughter. Cindy attended school at Washington Township until she was 18. After leaving school, Cindy went to the Noble workshop. When a new executive director came in wanting to do away with the workshop, Mary Lou was ready to organize a parent protest. However, a day after attending a meeting with the director, she called the director to tell him to find Cindy a job. For the next 20 plus years, Cindy worked for a pharmaceutical company until her job was outsourced.
“If something happened to Don or I, everybody that works with Cindy, my kids, my neighbors, everybody knows to go to this one spot and everything is in there,” explains Mary Lou of the death folder she maintains. Important documents such as birth certificate, power of attorney and trust fund papers are included in the folder.
Mary Lou also discusses staffing issues, funding, and her parent advocacy work. She says, “I was very busy.” A few of her activities included planning Christmas parties, attending conferences, arranging speakers for meetings, and advising parents. Mary Lou was interviewed in 2017.
Author and Boston University Professor William McKeen joins Through the Gates to discuss his new book "Everybody Had an Ocean," as well as The Beach Boys, Charles Manson, and the music and mayhem of the 1960s.
In episode 55, we talk to David Kay of Memphis Meats, a California-based company working to change the way meat gets to your plate by producing real meat from lab-grown animal cells.
Melinda Swenson, Carol McCord, Jennifer Bass; Betsy Jose; Stephanie Sanders
Summary:
Marriage Equality Collection includes audio and video files, photographs, historical documents and ephemera representing experiences of same-sex couples married in the decade of legal marriage in the U.S. Particular focus is on the experience of couples in Indiana. This archive is growing in both content and scope.
"I couldn't see myself making a career standing bagging somebody's groceries," Melody Cooper explains. Starting her employment at Goodwill Industries and then at a Meijer store, Melody was hired by The Arc of Indiana. She attributes her career growth directly to Partners in Policymaking training that led to her becoming active in Self-Advocates of Indiana (SAI). After SAI's Betty Williams encouraged her, Melody had started attending meetings in 2000. "So yes, I have come a long way." She was interviewed in Indianapolis in 2013.
The Avalon Media System is an open source system for managing and providing access to large collections of digital audio and video. The project is led by the libraries of Indiana University Bloomington and Northwestern University and is funded in part by a two-year grant from The Andrew W. Mellon Foundation.
Avalon is in the process of migrating digital repositories from Fedora 3 to Fedora 4 and incorporating metadata statements using the Resource Description Framework (RDF) instead of XML files accompanying the digital objects in the repository. Julie Hardesty at Indiana University and Jen Young at Northwestern University, the metadata portion of the Avalon project team, are working on a plan to migrate descriptive metadata from MODS XML to RDF. This talk will cover the planning process to date and how this step with Avalon informs a similar migration process of IU's digital library collections from Fedora 3 to Fedora 4.
Indiana University Bloomington’s digital library collections are moving repository versions from Fedora 3 to Fedora 4. This move means switching from using XML files for descriptive, technical, and structural metadata to using RDF statements defining those same descriptive, technical, and structural metadata properties. This talk will cover the analysis work so far to understand our collection models in Fedora 3 and identify patterns we might use for this metadata migration. Additionally, migration work to Fedora 4 is occurring for systems that have been external to the Fedora repository and those results will also inform metadata migration planning from Fedora 3 to Fedora 4. Join us for a bird’s eye view of migration in action!
Mike Furnish, President/CEO of Special Olympics Indiana, was interviewed in 2013. Here he shares a brief history of the creation of the not-for-profit organization that provides sports training and athletic competition for children and adults with intellectual disabilities.
The first Special Olympics games were held at Soldier Field in Chicago in 1968. Athletes from the United States, Canada and France participated in the games. In 1969, a group of volunteers organized the first Special Olympics Indiana games in Indianapolis. Mike Furnish, President and CEO of Special Olympics Indiana since 2007, started his involvement with Special Olympics in 1973 as a volunteer basketball coach. Mike will retire from Special Olympics Indiana in December, 2017. He was interviewed in 2013.
Globally, Special Olympics offers at least 40 different sports. “The whole premise is that no two people are alike in their interests or abilities,” explains Mike. Special Olympics does not have an off-season. In addition to the summer games held on the campus of Indiana State, there is an annual winter games with downhill skiing, ice skating and snowboarding. Special Olympics Indiana has a small staff that coordinate the events, but as Mike explains, “One thing that characterizes our organization today is that we really are an organization of volunteers.”
As there have been paradigm shifts in services, Special Olympics has changed over time. In 1988, Indiana was one of the first states to pilot test the Unified Sports program. The program brings together people with and without disabilities to train and compete against other unified sports teams. Mike says, “It was timely in the sense that that had paralleled what was taking place in schools as kids were moving away from special education settings into broader, more general settings.”
Mike describes how Special Olympics Indiana has been a forerunner in the Special Olympics movement. Indiana introduced ballroom dancing and flag football as Special Olympic sports. In the late 1990s, the Athlete Leadership program was developed. A few of the program’s topics include public speaking skills, participation on committees, coaching techniques, and rules for officiating.
Looking toward the future, Mike discusses the need for Special Olympics Indiana to promote healthier lifestyles. Mike says, “We find when we have done health screenings at our events, that 7 out of 10 of our athletes have an acute medical problem on the day they're there.” Special Olympics Indiana is reaching out to the medical community; providing healthy living training to athletes and volunteers; and targeting children age 2 to 7 with a program called Young Athletes. Mike explains, “It’s great stuff for sports, but it's great stuff for life when a person at that age begins to learn how to maintain their balance and do some of the basic things that sometimes just are ignored because people think they can't.”
After a whole year of experimenting with applying agile scrum to relationships, the Multiamory crew is proud to present our new and improved relationship check-in model: RADAR! Learn about the benefits of establishing a regular monthly check-in for your relationships, plus follow our easy step-by-step process for creating a safe, supportive, and productive way to foster intimate communication. For an easy way to start, download our PDF Template: Relationship RADAR. - Multiamory Podcast Website
Nancy Kalina, Kim Davis, Jennifer Bass; Betsy Jose; Stephanie Sanders
Summary:
Marriage Equality Collection includes audio and video files, photographs, historical documents and ephemera representing experiences of same-sex couples married in the decade of legal marriage in the U.S. Particular focus is on the experience of couples in Indiana. This archive is growing in both content and scope.
“If you want to talk about a typical day for a student with a disability, you almost have to talk about what kind of disability to be honest,” explains Nancy Kalina. A former research associate at the Indiana Resource Center for Autism, Nancy worked at Bloomington North High School in Bloomington, Indiana as a work-study coordinator from 2000 to 2011 and helped with student transitions out of high school.
She describes the certificate, diploma and honors tracks available to students. Nancy explains the peer-tutoring program. She says students may help with academics, assist with an in-school job or be a bridge builder within a class. Circles of support are another option schools have used to benefit students. In addition to transition coordinators, Nancy feels the school systems need someone who could educate parents starting in the 8th grade on the various components of transitioning from school to adult services. Teachers know about curriculum and Individualized Education Programs (IEPs), but not necessarily how Vocational Rehabilitation Services work or the importance of the Medicaid Waiver.
Nancy discusses her experiences with facilitated communication, a type of augmentative communication. She address some of the controversies surrounding the practice. She also shares thoughts on training needs for professionals entering the field of disabilities. Nancy was interviewed in 2013.
We talk to Morgan Mohr, a senior at Indiana University Bloomington studying political science, history and feminist policy. Morgan was recently named a 2017 Rhodes Scholar.
Hare, Sarah, Higgins, Richard, Wittenberg, Jamie, Regoli, Michael
Summary:
The landscape of open access publishing continues moving beyond scholarly journals. The IU Office of Scholarly Publishing (OSP)—a collaboration between the Scholarly Communication department at IU Libraries and Indiana University Press—leverages new tools and digital technologies to facilitate the open dissemination of data, 3D objects, and eTexts. Several of these innovations are supported by our new workflow for XML-first publishing, making publishing in HTML and EPUB formats also possible.
In this talk, representatives from the OSP will share an overview of open access publishing trends generally and OSP work specifically. Join us to learn more about how these innovations are shaping open access publishing at Indiana University by making it more accessible, versatile, and interoperable.
In episode 68, we speak to Patrick Feaster, media preservation specialist and scholar of sound recording at Indiana University, and Erika Dowell, associate director of IU's Lilly Library about the collection of Orson Welles' materials being preserved and archived at the university. The duo also talk about the university's Media Digitization and Preservation Initiative.
The IU Libraries have a long history of delivering access to digital musical scores beginning with the Variations project in 1997. In 2014, the IU and IUPUI Libraries began work on a collaborative project to develop a new page turning application built upon the Hydra/Fedora open source software. In 2017, a new musical scores service is being launched to replace the retired Variations software.
The IU Libraries adapted the Plum software, developed by the Princeton University Libraries, into Pumpkin, a Hydra Head to support digitization workflows for various paged media projects. In Bloomington, our first project will be Musical Scores. In Indianapolis, their first project will be newspapers. This software features tools to assist with importing digitized page images, ordering and numbering pages, adding bibliographic metadata, setting access controls, and making the digital object viewable within a customizable module called the Universal Viewer. The Universal Viewer is a front end for an International Image Interoperability Framework or IIIF or more commonly called ‰ÛÃtriple I F‰ÛÂ.
This presentation will detail the software's functionality, the history of the development process, and the migration of Variations musical scores into this new system.
"We had legislators who came in and talked to people about how to communicate with a legislator, how to write to legislators." The Indiana Governor's Council for People with Disabilities (GCPD) had its first Partners in Policymaking graduation class in 1991. Partners in Policymaking was a leadership training program for adults with disabilities and parents. In this video, retired GCPD Executive Director Suellen Jackson-Boner, Paul Shankland, Betty Williams, and Judy Patterson talk about the role of the program and its impact on graduates. The program was created in Minnesota and adapted nationally.
Digitization has completely changed the literary archive. Historians of the novel used to work on a few hundred nineteenth-century novels; today, we work on thousands of them; tomorrow, hundreds of thousands. This new size has had a major effect on literary history, obviously enough, but also on critical methodology; because, when we work on 200,000 novels instead of 200, we are not doing the same thing, 1,000 times bigger; we are doing a different thing. The new scale changes our relationship to the object of study, and in fact it changes the object itself, by making it entirely abstract. And the question arises: what does it mean to study literature as an abstraction and by means of abstractions? We clearly lose some important aspects of the literary experience. Do we gain anything?
In 1964, Paul decided to interview at the Fort Wayne State School as a recreation aide. They had football and baseball games, dances, and a summer camp. Although these activities were fun, the experience was different in retrospect. The daily living of getting up, bathing, eating, and going to bed was very regimented. Life was miserable for the residents. Paul saw a lot of mistreatment of residents during his eight years at (the renamed) Fort Wayne State Hospital and Training Center.
After leaving the hospital, Paul worked at the Division on Mental Retardation and Department of Mental Health. Part of his job was to bring new ideas to the disability field. He helped introduce group homes to Indiana in the 1970s. In developing regulations for group home operations, Paul and colleagues were concerned the institutional model would be adopted by the group homes. Paul states, “A lot of that proved true – and it was again people with good intentions, or at least they thought they had good intentions.” Paul discusses initiatives funded by the Indiana Governor’s Council for People with Disabilities. He believes the most important project the Council ever funded was Partners in Policymaking. The program brings together people with disabilities and family members for eight weekends over the course of a year to develop leadership skills. He explains how the Council evolved when Suellen Jackson-Boner became the administrator.
When asked to identify the biggest changes in the disability field over his 30 plus years, Paul stated the closing of the institutions. In addition, Paul shares his observations on community attitude changes. Paul retired from the Indiana Governor’s Council for People with Disabilities around 2009. He was interviewed in 2013.
Marriage Equality Collection includes audio and video files, photographs, historical documents and ephemera representing experiences of same-sex couples married in the decade of legal marriage in the U.S. Particular focus is on the experience of couples in Indiana. This archive is growing in both content and scope.
E.J. Dionne, columnist for The Washington Post, helps us ring in the 50th episode with a discussion on the polarization of politics and the importance of empathy.
