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"The biggest thing is the values that started with the Deinstitutionalization Project and went on through all of our projects about consumer advocacy, self-determination, empowerment to people with disabilities, language use... just totally different values about people with disabilities." Vicki (Victoria C.) Pappas arrived at the Developmental Training Center (D.T.C.) in Bloomington as a graduate student in 1974. The D.T.C. was the the original name of the Indiana Institute on Disability and Community (IIDC). Vicki retired as director of the IIDC's Center for Planning and Policy Studies the year prior to this 2013 interview.
Vicki discusses the history of the IIDC and significant activities involving government and other partners in the state of Indiana. She talks about her experience with the Deinstitutionalization Project directed by Mike Tracy in the early 1970s, the legacy of former Director Henry J. Schroeder, and the impact of important legislation in shaping the work of the IIDC, including passage of the Americans with Disabilities Act and its implementation in Indiana. She also discusses voting participation and access, developing the state disability plans with the Governor's Council for People with Disabilities, and the creation of the IIDC's Collaborative Work Lab for digitally assisted group decision making.
In episode 58, we discuss journalism, languages, foreign correspondence, and more with Elaine Monaghan, career journalist and professor of practice in the IU Media School.
Data mining encompasses a several different approaches to exploring large swaths of information, from the open largely unstructured text of the novel to the structured world of social-network entries to the automated comparison of photographs on a pixel-by-pixel basis. We'll use your research question or object as the entry point to make sense of the world of data mining and send you home with an activity you can adapt and use to introduce your students to data mining in your discipline.
This presentation is part of a series of workshops offered by the Institute for Digital Arts and Humanities called Choosing a Digital Method.
In 2016, Betty Williams received the Champions of Equal Opportunity Award from the National Association of Councils on Developmental Disabilities. Betty received the award for her leadership in promoting voting rights, serving on committees addressing disability issues, organizing self-advocate groups, and training across the country. Betty got her start in the early 1990s when she joined her local advocacy group. In 2014, Betty was appointed to the President’s Committee for People with Intellectual Disabilities.
In addition to discussing her work on the national level, Betty shares stories about her work in Indiana. She was involved in changing the name of the MRDD commission to the DD commission. Betty reflects on her advocacy work with Darcus Nims. “She was like my friend, my mentor, my trainer,” explains Betty. Together, they helped incorporate Self-Advocacy of Indiana. They traveled the state training people on the importance of self-advocacy. Betty understands there is still work to be do, which is why she wants to be a part of self-advocacy until she retires. Betty says, “I am going to retire like normal people. You know, I am. I have that plan. But even then I might do something around self-advocacy, you know?” Betty Louise Williams was born in 1959 and died in 2018. She was interviewed in 2016.
Our information technology (IT) infrastructure is not perfect and data can be corrupted by means both malicious and random. This talk covers some of the issues with IT infrastructure that lets data corruption creep in and NSF-funded work by the authors to augment a popular workflow management system (Pegasus) to provide increased scientific data assurances.
We hope you're eagerly poring over your NSSE 2017 results. To support your efforts, please join Jillian and Bob for a step-by-step walkthrough of your Institutional Report package. We will review the data and reports, and provide general strategies and resources for utilizing and disseminating your results.
When Byron Smith was in sixth grade, his mother got a call from his teacher. She said, "Byron is out there on the monkey bars and he's sitting on the top bar and he's not hanging on with his hands." “My mom said, ‘Let him alone. Yes, he may fall. Yes, he may get hurt but as long as he's not being irreverent or grandstanding or behaving poorly, if he's just out there with the guys, shooting marbles in the gravel or climbing the monkey bars, let him go.' That was pretty much the attitude that my family had… do as much of everything with everybody as I could.” Byron recounts how he had attended public school for kindergarten and half of first grade in Bloomington, Indiana, before losing his sight due to eye disease.
In 1951 "Bikey" entered the Indiana State School for the Blind. He learned Braille while attending grades 1 through 5 at the residential school in Indianapolis. With concerted advocacy from his parents and many others, he was permitted to re-enter public school in Bloomington for the 6th grade, the first blind pupil to transfer from the state school. Byron attended University Junior High and High Schools and graduated Indiana University with a degree in radio and television. He shares some stories about how he got into the field of radio. He worked at the University for over 37 years as a reporter, editor, and radio producer.
Byron was active as a member and chairperson of the City of Bloomington’s Council for Community Accessibility and was co-founder of the Handicapped Improvisational Theater, later known as Diversity Theatre. Byron also talks about the work he did with his wife Patsy in audio description. Byron K. Smith was interviewed in 2013. A life-long Bloomington, Indiana resident, he died in 2016.
"When I started in 1977, when people were admitted they brought with them what was called their death bag." The bag contained the clothing that residents of New Castle State Hospital were to be buried in. Sue Beecher recalls her employment at the institution in New Castle, Indiana for people with seizure disorders. Sue went on to work for Indiana's newly established Bureau of Developmental Disabilities Services (BDDS) and Indiana Protection & Advocacy (IPAS), where she retired prior to this 2013 interview. (IPAS has since changed its name to Indiana Disability Rights.)
Sue talks about the New Castle procedures that patients underwent without consent, and the restraints and aversive measures that were used to control their behaviors. Years later, as an IPAS representative on Muscatatuck State Developmental Center's Human Rights Committee, she again witnessed violations of residents' rights. It was the late 1990s, prior to Muscatatuck's closure. "You cannot walk onto a unit and see visible injuries on 12 or 14 people that weren't there the week before and not suspect something is terribly wrong there. And these folks were non-verbal, so they're not going to be able to tell."
As IPAS' work expanded via federal grants, Sue was instrumental in getting the traumatic brain injury and PABSS (Protection and Advocacy for Beneficiaries of Social Security) programs up and running. She relates her satisfaction in those accomplishments and her pride in this independent state agency charged with protecting the rights of Hoosiers with disabilities. "In Indiana, we've gone ahead and sued when we needed to, we've never backed down." In 2011, Sue received the Terry Whiteman Award for her work at IPAS. Sue also discusses the development of group homes and the intensive effort to open new group homes between 1989 and 1991 while she directed the Indianapolis BDDS office.
"It's been a real adventure, but he just was thrown in the mix with his three brothers." Al and Linda Hublar talk about the lack of support and resources available when their son Mark was born with Down syndrome in the 1960s. They have made a point of treating him the same as his siblings without disabilities. Linda and Al were interviewed in New Albany, Indiana in 2017.
The 2016 election cycle showed us how digital methods like image manipulation, social network analysis and data mining can change our perceptions of the world around us. This presentation will take these digital methods and demonstrate how applications to the arts & humanities can help us craft new research questions and answer those questions. We will discuss how to (or not to) apply mapping, data mining, network analysis, data visualization, 3D rendering, computationally aided vision and other digital methods to a variety of disciplines. We’ll also provide a clear list of IU resources that can support these efforts. Finally, we’ll engage in a practical white-board-based activity that doesn’t require digital tools to demonstrate how analog methods can enhance understanding of some of these digital-methods applications in a variety of environments (including the classroom).
This presentation kicks off a series of workshops offered by the Institute for Digital Arts and Humanities called Choosing a Digital Method.
In episode 57, we chat with Dr. Caty Pilachowski, Professor and the Kirkwood Chair in Astronomy at Indiana University Bloomington, about the 2017 solar eclipse and IU's CelestFest event
"Dickerson, I finally get it," a fiscally conservative State Senator from Hendricks County remarked. "He said, 'I'm on the board of directors of the bank and we hired this fellow with a disability. I don't even know what his disability is, but he's one of our best damn employees.'" As executive director of The Arc of Indiana, John Dickerson worked with legislators for decades to "fight on behalf of parents of individuals with disabilities to make the systems responsive." John recounts the evolution of what became the second largest Arc in the country in his 2013 interview. The group emerged out of the national movement by parents who had offspring with intellectual disabilities and wanted to band together to improve the lives of their children. The organization was known as the Indiana Association for Retarded Children when it was founded in 1956. John discusses the changing names of the association as a reflection of changes in language about people with disabilities, as well as The Arc's close relationship with self-advocates.
John talks about the organization's influence on public policy. "The Arc isn't particularly well known in the general public. But we're remarkably well known with policymakers and legislators." He discusses The Arc's effort to get information to families about benefits and services, an initiative to support small businesses owned by people with developmental disabilities, and The Arc Master Trust. The latter is a mechanism enabling families to leave money to benefit their son or daughter with a disability.
John considers the leadership role Indiana has played in the disability arena nationally, despite its relatively low profile. He reminisces about the late Elbert Johns, who was a long-time executive director of Stone Belt Arc in Bloomington. John Dickerson retired as Executive Director of The Arc of Indiana in 2015.
"Customers come up to me and they'll talk to me like they've known me for years." Cori Mitchell loves her job at a movie theater. As a high school senior in Colorado she was left with a head injury from an automobile accident. Soon after, in 1989, she moved to Indiana. Cori was interviewed in 2013. She discusses the support she's received from her family, from Vocational Rehabilitation Services, and from her employer.
When talking about services in the ‘60s and ‘70s, Margaret Blome says, “There was very little available for people with multi-handicaps.” Margaret did find a therapist at Crossroads Rehabilitation Center in Indianapolis who worked with her daughter, Barb, on learning to crawl, how to drink from a straw and other basic skills. When Barb was kindergarten age, Margaret found it difficult to find educational opportunities for her daughter. At the St. Mary’s Child Center, Margaret was introduced to other mothers who had children with disabilities. They formed a support group that met twice a week for two years. Margaret says, “I think overall, I was pretty supported.” Her parents said they would back any decisions she would make. Over the years, Margaret’s neighbors have been supportive. She says, “I said I couldn’t move. I have to educate another whole neighborhood.”
“Barb was born in 1962 and at that time, there was very little available for people who were multi-handicap,” states Margaret. In the early days, Margaret turned to Crossroads Rehabilitation Center for services for her daughter. After attending St. Mary’s Child Center and Noble up to the age of 11, Barb entered the public school system at the Cold Springs School with other children with disabilities. Margaret says, “She had a really good experience in that program. Then she aged out of it. She was 18 and I had no services for a year.” After a year, Barb went back to Noble and has been then ever since. Margaret discusses how Barb spends her day. She enjoys music therapy, riding a stationary bicycle, and going for walks at the mall or park.
Margaret feels fortunate with the support her family has received from doctors, friends and neighbors over the years. She says, “My neighbors have been supportive. I said, I couldn’t move, I’d have to educate another whole neighborhood.” Today, Barb lives in a waiver home with two roommates. She does visit her parents often on weekends.
Margaret also discusses different parent groups, person centered planning and Barb’s future. Margaret shares her concerns about services. She says, “I think there's still room to grow but we also need to make sure we don't lose the services we have now.”
On December 24, 1958, Mary Lou and Don Melloy were told their daughter Cindy should be placed in an institution. Mary Lou said, “My response was that they didn’t know what they were talking about…a very unhappy, aggressive mother left the room.” Instead, the Melloys took Cindy home and she started receiving services from Easterseals in Evansville, Indiana.
The Melloys eventually moved to Indianapolis. When Cindy was five years old, Mary Lou visited every school corporation in Marion County trying to find the best school for Cindy. Mary Lou decided Washington Township would be the easiest school to "strong arm" into taking her daughter. Cindy attended school at Washington Township until she was 18. After leaving school, Cindy went to the Noble workshop. When a new executive director came in wanting to do away with the workshop, Mary Lou was ready to organize a parent protest. However, a day after attending a meeting with the director, she called the director to tell him to find Cindy a job. For the next 20 plus years, Cindy worked for a pharmaceutical company until her job was outsourced.
“If something happened to Don or I, everybody that works with Cindy, my kids, my neighbors, everybody knows to go to this one spot and everything is in there,” explains Mary Lou of the death folder she maintains. Important documents such as birth certificate, power of attorney and trust fund papers are included in the folder.
Mary Lou also discusses staffing issues, funding, and her parent advocacy work. She says, “I was very busy.” A few of her activities included planning Christmas parties, attending conferences, arranging speakers for meetings, and advising parents. Mary Lou was interviewed in 2017.
"We were asking teachers to do some things they had not done before, to interact and support and teach kids that they didn't have a lot of experience doing in the past." An educator and a parent discuss the beginnings of integration of students with disabilities into the public schools in the 1970s, and the impact of the 1975 Education for All Handicapped Children Act. A compilation of excerpts from interviews with Pat Barber and Dixie Patterson.
In 1998, Indiana’s “317 Commission” of consumers, advocates, and state officials published "A Comprehensive Plan for the Design of Services for People with Developmental Disabilities", addressing the need for services to support people with developmental disabilities in their homes and at work. An expose of abuse at New Castle State Developmental Center had provided the initial impetus for action. The "317 Plan" marked a significant step in Indiana's history of providing services to people with disabilities. John Dickerson, David Mank, Randy Krieble, and Bettye Dunham talk about the impact the Plan had on funding and waiting lists for community based services, and on shaping those services.
Donna Jo Copeland (Master), Jon Kay(Director), Ben Schreiner (Videographer), Paul Schreiner & Rick Watson (Music), Traditional Arts Indiana
Summary:
Donna Jo Copeland has exhibited textiles for forty years at the Indiana State Fair, winning numerous awards and gaining recognition for the distinct style of her creations. At the knee of her great grandmother, she learned the skills of knitting, tatting, flat pattern work, and sewing. After purchasing a loom, she taught herself to spin and weave. Taking inspiration from the materials she produces on her farm, she creates between 20 and 25 entries every year for the fair. With her daughter and granddaughter, she is now part of three generations who continue the traditions of needlework at the State Fair.
Patti Light (Master), Jon Kay (Director), Ben Schreiner (Videographer), Pete Schreiner (Music),
Summary:
As a small girl, Patti Light saw a baton twirler in a local parade, which ignited her lifelong passion for the baton. Having twirled for most of her life, she continues to be active in this sport and art through teaching students and judging at the State Fair.
The Roney Family, Jon Kay (Director), Ben Schreiner (Videographer and Music), Traditional Arts Indiana
Summary:
In 2008, the Tuttle Orchard celebrated their 80th anniversary. Like their grandfather Roy Tuttle and their parents Ray and Virginia Roney, Mike and Tom Roney consider participation at the State Fair an important part of the family’s tradition of excellence in growing apples.
