101. Suellen Jackson-Boner Interview (29:56)

Date:
2015-12-06
Main contributors:
Indiana Disability History Project
Summary:
"The initiative on livable communities is one that I was super excited about, because I think to me that's where the disability community should be." Suellen Jackson-Boner discusses the direction that the Indiana Governor's Council for People with Disabilities was taking when she retired in 2015. Interviewed in that year, Suellen had been the Council's executive director for 35 years. She recalls the early days of the agency, which is mandated by the 1975 Developmental Disabilities Assistance and Bill of Rights Act, but was strictly an advisory body at that point. After effecting a funding transition that allowed the agency to become independent in its activities, community employment was an early focus. "At that time, supported employment was just beginning across this country" and the goal was "to show that this was very viable, that people with severe disabilities could actually work." The cooperation of four state agencies to create this initiative in the early 1980s was remarkable, Suellen points out. Early group homes, another Council emphasis, were an important vehicle for getting people out of institutions. The Council went on to serve as a catalyst for supported living and home ownership by people with disabilities. Suellen talks about how the Council has promoted leadership among people with disabilities, building their capacities to make change, through support of early self-advocacy groups and such programs as Partners in Policymaking. Prior to passage of the Americans with Disabilities Act in 1990, "the staff was heavily involved in working toward organizing people" to effect its passage. Then it sponsored trainings to educate people, particularly people with disabilities, about what the legislation entails and how to use it as an advocate. Count Us IN was a 2002 Council project surveying the accessibility of polling places. Employing people with disabilities as surveyors, thousands of polling places were assessed on election day, with support and follow-up from the Secretary of State's office. The Council's annual statewide conference on disability "has grown year after year and brought in a lot of people from all over the state and sometimes even neighboring states," Suellen recounts.

102. Talk Time Featuring Dr. Stephen Porges: Polyvagal Theory (1:03:27)

Date:
2019-10-10
Main contributors:
Porges, Stephen W.
Summary:
Talk Time host Dr. Rebecca Jorgensen discusses trauma and the Polyvagal Theory with Dr. Stephen Porges. Dr. Stephen Porges' shares key finds from his research about the neuroscience of emotions, attachment, communication and emotional regulation. Original publication: https://www.youtube.com/watch?v=4kgO3HOP8VQ

103. Talking Folklore: A Conversation with Leading Scholars of Folk Religion and Belief (2:00:21)

Date:
2015-10-16
Main contributors:
Shukla, Pravina; Goldstein, Diane E.; Griffith, James S.; Primiano, Leonard Norman
Summary:
This forum features a conversation with prominent folklorists who will reflect on their respective careers, and meditate on the past and future of our discipline. The forum contributes to the intellectual history of folklore; it will be recorded, as past forums have been, for the AFS “Collecting Memories” Oral History Project. This year’s forum will focus on folk religion and belief, by looking at the “life of learning” and the choices, chances, and triumphs of participants Diane Goldstein, Jim Griffith, Elaine Lawless, and Leonard Primiano. Pravina Shukla will once again facilitate this exchange about their academic and public work, their fieldwork and festivals, and also their important involvement in our field and in our scholarly society over the past several decades. (Sponsored by the American Folklore Society.)

104. The Don Yoder Lecture in Religious Folklife: "A Subtle Thing Withal”: Reflections on the Ineffab... (1:18:04)

Date:
2015-10-15
Main contributors:
Brady, Erika, Kruesi, Margaret, Primiano, Leonard Norman
Summary:
Many years ago as a graduate student studying William Langland’s Vision of Piers Plowman, I came upon what was evidently a popular scatological riddle pertaining to a profound theological teaching. Since that time I have continued to ruminate over the role of humor—especially sexual and scatological humor—arising from within vernacular Catholicism. In this talk, I will consider the serious play of such forms of expression and their significance for folklorists concerned with the nature of belief in the sacred.

106. The Ethics of Naming and the Perils of Masking in Ethnography (1:27:24)

Date:
2015-12-11
Main contributors:
Jerolmack, Colin
Summary:
Ethnographers routinely employ pseudonyms and even mask the sites (e.g., street corner, neighborhood, city) of their research. This is usually justified as an ethical necessity, to protect our participants. In this talk, drawing from a paper I am co-authoring with Alexandra Murphy (Michigan), I challenge this justification and spell out some of the ways that masking can potentially harm research participants and impede social science research. Regarding ethics, I show, on the one hand, how masking often fails to provide the guaranteed degree of identity protection and, on the other hand, how research participants may have a very different understanding of what the researcher owes them that has little to do with whether or not they are named (e.g., portraying them as a human, not just a social type). Regarding scientific integrity, I argue that masking reifies ethnographic authority, invokes a pseudo-generalizability that downplays the particularities of the case (e.g., "Middletown"), and inhibits replicability (or "revisits"), falsifiability, or comparison. I conclude by arguing that masking is a convention, not an ethical or IRB necessity, and while I concede that there are many cases in which masking is the ethical choice, I contend that we should no longer consider it the default option.

108. The Hydra common data model (27:28)

Date:
2015-06-10
Main contributors:
Cowles, Esme, Sanderson, Robert, Stroop, Jon
Summary:
Presentation at Open Repositories 2015 (OR2015), the 10th International Conference on Open Repositories, Indianapolis, Indiana, in session P4A: Managing Research (and Open) Data.

110. The once and future repository, HKU's Scholars Hub (27:06)

Date:
2015-06-10
Main contributors:
Palmer, David T.
Summary:
Presentation at Open Repositories 2015 (OR2015), the 10th International Conference on Open Repositories, Indianapolis, Indiana, in session P5A: Building the Perfect Repository.